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Dementia

Responding to Older Adults with Substance Use, Mental Health and Gambling Challenges

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People sometimes find it harder to remember certain things as they age, but this is not dementia. Dementia is a brain condition that affects memory and thinking. Its effects depend on its cause, the parts of the brain affected, and the severity or stage of the illness.

Dementia makes it harder for people to perform daily tasks, to socialize and to deal with change and uncertainty. It can also cause changes in a person's mood or behaviour.

Kinds of dementia

Different forms of dementia include:
  • Alzheimer disease (affects 66 per cent of people with dementia)
  • vascular dementia caused by stroke (the second most common form)
  • Lewy body dementia (affects 15 to 20 per cent of people with dementia)
  • frontal lobe dementia (affects two to five per cent of people with dementia)
  • alcohol-related dementia.

Care for people with dementia

Treatments for dementia usually cannot stop or reverse the changes to the brain. They can, however, sometimes slow its progress or treat certain symptoms. One exception is alcohol-related dementia, which may lessen or reverse if drinking is reduced.

People with dementia are just as likely to live at home on their own or with family as they are to live in residential care (Canadian Study of Health and Aging, 1994). They do better when they are able to:

  • take care of themselves as much as possible for as long as possible
  • stay in the same living situation
  • be in contact with the same people
  • follow the same routines as much as possible.

When certain daily tasks-such as shopping, cooking, bathing or housework-become too difficult, workers and volunteers can help people with dementia remain at home longer. In the later stages of the disease, many people need to enter long-term care homes.

Offering choices

Whether older adults live at home or in long-term care, they need to have a sense of independence and free will. Even if they become less able to take care of themselves, they may still wish to choose what to eat or wear, or what activities they do. Allowing choices can help to maintain their dignity in the face of a difficult disease.

When offering choices, remember that some people with dementia have difficulty making decisions-so being pressed to choose could cause them anxiety and stress. If the person seems to be unable to choose, limit the choices offered, or help him or her to make the choice. You could say, for example, "The chicken is very good today; I think you'll like it," or "This blouse looks good on you; let's try this one on."

Delirium versus dementia

Delirium sometimes looks like dementia, but is very different. Dementia usually develops over a long time, often over many years. Delirium is a severe confusion that comes on quickly and is temporary. Delirium can be life-threatening and requires immediate medical attention.

Warning signs of delirium include sudden changes in a person's thinking and behaviour, or changes that seem to come and go over a day. Possible causes of delirium include illness, head injury, lack of fluids, or a reaction to alcohol or certain medications, such as anesthetics used during surgery.

How common is dementia in older adults?

People are more likely to develop dementia as they age. Dementia is found in:

  • two per cent of Canadians 65 to 74 years of age
  • 11 per cent of Canadians 75 to 84 years of age
  • 35 per cent of Canadians 85 years and over (Canadian Study of Health and Aging, 1994).

Signs of dementia

It's common to forget a name or miss an appointment and then to remember it later. When people have dementia, they don't remember later. They may ask you a question, listen carefully to your answer, and then ask the same question again.

Dementia develops at different rates in different people. People with dementia are likely to have at least a few of the following signs:

  • forgetting appointments, misplacing belongings
  • difficulty finding words, recognizing objects, performing familiar tasks
  • repeating words or phrases
  • losing their way in familiar places, not knowing what time or day it is
  • behaving in inappropriate ways, using poor judgment
  • changes in mood, such as quickly shifting from laughter to tears to shouting
  • changes in personality, such as becoming irritable, suspicious or fearful
  • constant demands for attention and reassurance
  • difficulty making plans and solving problems
  • loss of interest in previously enjoyed activities
  • loss of interest in being with others
  • depression.

How to talk with an older adult who has dementia

It may be hard for people with dementia to find the right words to say what they want to say and to understand what you are saying to them. But people with dementia need to express themselves and interact with others as much as anyone else. They may become frustrated. Your patience and understanding can sometimes help to ease their frustration.

When speaking to people with dementia:

  • Use a normal, calm tone of voice; convey warmth, understanding and respect; avoid using baby talk and terms like "dearie."
  • Ask simple yes or no questions (e.g., "Are you hungry?" or "Would you like to have something to eat?"). If you need more precise information, ask others, such as family members, to fill you in. Try not to overwhelm people with dementia by asking questions they can't answer.
  • Be patient and give them time to answer.
  • Focus on their strengths and abilities (e.g., "I see you got some exercise-it's fantastic that you take such good care of yourself.").
  • Always explain what you are about to do for the person (e.g., "I'm here to help you get dressed. First I'll help with the buttons on your pyjamas.").
  • Help them to stay oriented in terms of time, date and place (e.g., "Today is Tuesday."). Never ask them to tell you the time, date or place; they likely won't be able to, and so will feel they have failed.
  • Help them to reminisce; ask to see a photo album or to hear a story about their childhood or career. Even if you have heard the stories before, it gives them pleasure to tell you again, and helps to build a good relationship.
  • If they tell you something that you know is not true, don't argue (e.g., if the person says her mother is coming, but you know her mother is dead, say "Tell me about your mother.").
  • If they are focused on something they cannot have at that moment, introduce another topic from what you know about the person (e.g., "I saw your granddaughter visiting with you earlier today.").
  • If you need to speak with someone about the person with dementia while the person is there, remember that the person can hear you, and may understand what you say.

How to deal with behaviour changes

Aggression

People with dementia may become aggressive when they feel fearful, powerless or threatened. Check with your agency for guidelines on how you should deal with aggressive behaviour.

When working with people who are known to be aggressive:

  • Ask the family or other workers if the person's aggression is triggered by certain situations (e.g., being told to do things or being bathed).
  • When possible, create a soothing and safe environment where the person feels a sense of control and is not crowded or bothered by noise. Ask if certain types of music may help to soothe the person.
  • If the person does become aggressive, remain calm and leave the room. Do not try to reason or argue. Wait a few minutes and then come back in. Greet the person with a smile to help refocus the person's attention.
  • Most important, keep safe. Report any episodes of aggression to your supervisor.

Reduced inhibitions

Dementia can affect people's judgment and reduce their inhibition. Although rare, this can sometimes result in awkward sexual behaviours, such as undressing in public, making sexual gestures, or inappropriate touching or language. Again, check with your agency for guidelines to deal with this behaviour.

Remember that this behaviour is caused by the disease. Try not to over-react. Gently discourage the activity by redirecting the person's attention. For example, if an older man is rubbing his genitals, try to get him to do something else with his hands, such as playing catch with a large ball or balloon, or looking at a photo album. Another option is to bring the person to a private place. If you've been told in advance that this person may act this way, plan ahead for ways to redirect his or her attention.

Communication problems

As dementia progresses, it becomes harder for people to communicate. You can help them do the best they can by recognizing and accepting their limitations.

  • In the early stages: People with dementia are likely to be aware of their difficulty finding words. Help the person communicate by offering words or gentle reminders.
  • In the later stages: People with dementia may become less aware of their difficulty, but increasingly frustrated and agitated. Help them to find words only when necessary. Do not correct or insist. Use pictures or objects to help them remember.
  • In the last stages: People with dementia may be unable to communicate with words, but they may still be able to understand what you say. They may also enjoy non-verbal communication. When speaking, use gestures, facial expressions and tone of voice to help make a connection.

When to get help

If you believe the person needs a higher level of care for dementia, tell your supervisor. Give examples of how you have seen the person change. Someone may need to visit to re-assess the situation.

In Responding to Older Adults :

1 The Nature of Aging

2 Substance Use, Mental Health and Gambling Challenges in Older Adults

3 Communication Tools and Techniques

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